This was a cross-sectional study carried out in Eastern Uganda focusing on persons with albinism. Spatial mapping was done using Tablets with GPS (Global Positioning System) capabilities. Household and organizational characteristics were captured using a digital structured questionnaire, using ODK (Open Data Kit)-Collect application.
Perceptions of persons with albinism were gathered using in-depth interviews and analyzed based on the ecological model.
The main aim of this research was to create a database through the mapping of all persons with albinism and organizations serving them in the selected districts. We also determined perceptions of persons with albinism towards the communities they live in and the community perception towards them.
Results revealed that Sironko (20.2%), Bududa (17.9%), and Manafwa (17.5%) had the highest number of persons with albinism. Most respondents (56%) in households with Persons with Albinism had primary level education. The main reason for dropping out of school was the lack of school fees. More than two thirds (67.7%) of the respondents did not know the cause of Albinism.
Access to and cost of sunscreen remain a major challenge. 86.3%) of Persons with Albinism do not have access to sunscreen. In addition, (75.7%) of Persons with Albinism had an eyesight problem. Moreover, (76.8%) of Persons with Albinism had never gone for an eye checkup. Poverty levels were highest among households that had more Persons with Albinism. Read more….